The Blog is back!

The Blog is back!

After a much needed 4 weeks of downtime the Alex Lewis Trust blog is alive and nearly kicking.Christmas and New Year,my sons birthday and my birthday were wonderfully quiet affairs with close family and friends but now it’s back to work.

Firstly my family and the Trust cannot thank you all enough for your kindness and support, you made the last year simply incredible .
So now its 2015, along with continuing walking school to hopefully gain a few inches we will be enduring 5 more operations,attempting a world record breaking skydive,learning to hand cycle,getting hitched and much more.
I intend to update the blog more regularly to keep you all informed on progress and the future challenges ahead .The first of which is being aired tonight on ITVMeridian News at 6pm

By |2018-09-11T17:38:46+00:00January 22nd, 2015|ALEX BLOG LEARNING TO WALK AGAIN|18 Comments

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18 Comments

  1. Bez Cuss 22nd January 2015 at 5:24 pm - Reply

    All day I sit in front of a computer and talk to customers for hours and hours. I read your story today and I’m totally speechless, I don’t know what to say. I’m genuinely moved by your story and want to congratulate you on your sheer determination, guts and courage. I want to say `Well done mate’ or `Keep fighting’ but that just seems trite and meaningless as you’ve already shown that you can do this and so much more. Not only have you accepted what fate has thrown at you, you’ve even managed to laugh about it ! I burst out laughing at your description of yourself as `I, Dwarf Robot’ !
    Thank you for sharing your story with us and for your inspiration too.
    My best wishes to you and your family. I will follow your progress with interest and contribute in my own small way whenever I can.

    sincerely

    Bez

  2. zoe wynne 22nd January 2015 at 10:16 pm - Reply

    Glad to read your still feeling upbeat here’s to a taller future!!
    Zoe xx

  3. Rob Tempelman 22nd January 2015 at 11:32 pm - Reply

    Hi Alex. I have just read your story on the BBC website and felt compelled to write to you. You are truly an inspiration! All the best for your recovery and keep up the good work!

  4. Diana Stephenson 23rd January 2015 at 12:09 am - Reply

    I was very moved by the story on Meridien tonight and wanted to make a contribution to the trust? Unfortunately both your sites are down, perhaps you could direct me to another site?

  5. Sonia 23rd January 2015 at 12:11 am - Reply

    Alex – to say you are an inspiration is a complete understatement. What befell you could have happened to any of us yet few I guess could rise to the immense challenges the way you have . I’d like to contribute to the Trust but on the mobile site there doesn’t seem to be a way. I expect there will be a way to find you via Meridian tv or I will try the main site when back home or do please use my email .
    By the medical statistics … You shouldn’t have survived but although I don’t even know you… I am EVERSO glad you did. You have something very special to offer & teach the world. Your ability to accept or assimilate the change in your life is nothing short of astonishing. I look forward to hearing about your progress. Sonia

  6. Tanya 23rd January 2015 at 8:17 pm - Reply

    About time too!! Not much on this year then

  7. Les Howard 23rd January 2015 at 10:44 pm - Reply

    Hello Alex, I, like the other people on this blog, follow your story with interest, I truly believe you can teach people something very important in life and that is never give up !
    I have a physical deformity, which I have had since birth, but I can hide mine. Please continue with your exceptional attitude and feel sure that you inspire people. I wish you well with the skydive, pretty exciting.

  8. Gene R 4th February 2015 at 12:20 pm - Reply

    Alex & Family
    I’ve just heard your interview on 5live. As a man with a young boy myself I’m in awe our approach to dealing with the disease. Best of luck with the recovery & to your family.
    Regards
    Gene

  9. Lynne Georgiades 28th April 2016 at 11:27 pm - Reply

    Hi Alex. I watched the channel 4 programme tonight. You, Lucy and Sam are absolutely amazing. I know you will go from strength to strength with their amazing support together with your indomitable spirit. You said the last two years were the worst and also the best of your life. I am so happy for you. All the very best to you and yours.

  10. Adele Hedley 1st May 2016 at 12:25 pm - Reply

    I was so touched by your story, you are an amazing person to be able to remain positive throughout all your struggles. You & your wife are an inspiration to everyone. Im sure your future will be a happy one, you deserve so so much. God bless you & your family

  11. Margie 2nd May 2016 at 8:47 am - Reply

    Hi – I watched your story last night and am in total awe of you and your amazing partner Lucy. You are an absolute inspiration and put the world to shame. I salute you.
    May you continue to go from strength to strength
    You will stay in my thoughts xx

  12. Eleanor 3rd May 2016 at 3:41 am - Reply

    Hi Alex and Lucy,
    After watching your documentary, I felt that I just had to search the Internet until I found the page to donate. I eventually found it, and I’m happy to say that I found your blog. I just felt that I had to say to both of you that I think you are such an inspiration to each other, as well as to everyone else, Alex, the fact that you have managed to pull yourself through the painstaking struggles that you have had to endure to get where you are today, and Lucy, you have held everything together so well, between looking after Sam and working. You are both such loving parents, and everyone can see how much you love Sam. He is such a lucky wee boy to have you both, because if you have managed to survive the trials and tribulations of this journey you have both been on, then I’m sure he’ll never have to worry about anything with having parents as strong as both of you are. Sending my love and best wishes to you all for the future. xxx

  13. Stella Benson 3rd May 2016 at 10:17 pm - Reply

    Hi Alex and Lucy, I have just watched your programme. I was very moved by it. I was there with you for so much of it. Five years ago today my fingers were amputated and two weeks later my legs were removed below the knee. On 29th Match 2011 I was rushed into ICU with sepsis. I had a cold and apparently Strep A . I was in an induced coma for just over two weeks. My family were told to wait with me as they didn’t think I would make it through the night, but five years later I am still here driving everybody mad. My husband and daughters helped me so much. I did laugh when your son ran off with your leg – my grandson did the same to me. The hardest thing was not seeing my grandson for three months whilst I was in hospital. I woke up with a positive outlook (not to say I don’t have rubbish days) but I am still alive and able to enjoy my grandchildren. I do understand people who find recovery so difficult but as I say I was lucky to wake up with a positive mind. A long journey, still learning. I wish you a good and positive journey.

  14. Natasha 4th May 2016 at 10:51 pm - Reply

    Dear Alex & Lucy

    I feel somewhat overwhelmed after watching your documentary tonight. It touched myself and my partner in a very significant way as we have experienced a close family member going through the trauma of a serious illness which has left me almost broken at times. Just watching how you got through it all is a reminder of how strong the human spirit can be – thank you for reminding me of that.

    Watching the beautiful relationship between yourself, Lucy and your lovely little boy Sam was just inspirational & although you’re going to receive so many more messages of goodwill I just had to tell you what an absolute inspiration you and your family are. You story will stay with me & I look forward to hearing about what the future holds. You deserve every happiness and I hope my donation along with all the other’s is a small reminder of how much people really care. With lots of love XXX

  15. Fran Gumbrell 18th May 2016 at 2:23 pm - Reply

    Dear Alex, Lucy & Sam, just like everyone else I have been completely blown away by your story, I watched your documentary when it was first aired not knowing what to expect and within the first 5 minutes I was in total shock with tears streaming down my face. I can honestly say that since that day to this I have thought about you all every day. There are no words that do you all justice. I have donated to your trust and will continue to do so and will also continue to share awareness of your remarkable story with everyone I know. It was so great to see you on the Saturday morning news and I look forward to following your adventure in the kayak!! Also can’t wait to see the wedding pictures ( I hope you will share a couple?) you are a unique family and Sam is so lucky to have such amazing parents. WOW, I don’t know what else to say , I just wanted to let you know how deeply you have touched people. Keep going, keep going, keep going.
    Sending a tonne of love to you all. Fran, Kris & Lois Gumbrell xxx

  16. Brenda 30th November 2016 at 8:20 pm - Reply

    Hugs Alex;
    Thank you for sharing your story.

  17. Mary Anne Enriquez 24th February 2018 at 11:44 am - Reply

    I am in the USA and just a few minutes ago heard a BBC story about you (had never before heard of you). I was moved to scour the internet learning of your story. My heart goes out to you and your family! What a journey it’s been! I am not sure how American dollars can be donated to your trust…maybe through PayPal? I also wanted to know if you have your singing as recordings for sale, as I really find them very soothing. I am also unfamiliar with your past rock music group. I also wonder if there is a way to see the documentary of your life. Your story needs to go around the world! Maybe it has.

    I work with disabled people, and just am so blown away by your strength and how you say this is the best time of your life…cuz I do not understand that. I want to know more – what has motivated you through such an ordeal in saying you are glad it happened to you. You are an inspiration that I want to share with my clients. Thank you.

  18. Alexandra Pettitt 15th July 2018 at 11:42 am - Reply

    Dear Alex, Lucy and family,

    I think that by now you must have gathered up a hugely extended family how wonderful is that. I watched your true life story video and was so moved. I admire the strength and sense of hmour that you retain which is so I,portano in your recovery. Lucy and you are a tower of strength to most people seeing this video.. In fact all people that complain about their minor ailments in life should view this video to try and make them understand that their problems are nothing compared to yours and how cheerfully you. bear all this. A neighbour several years ago was out celebrating a birthday and was sadly knifed in the back reducing him to a wheelchair I visited the family and told him that there was hope that he would walk despite his injuries as I felt compelled to give hope as I wish to tell you Alex Licy there is hope and his hope was raised as now he does walk and drives as he has bionic legs prosthesis. I did one interpreting work at. Roehmpton where they develop and personalise prosthesis it is an amazing place. I also saw some time ago a friend sent via Facebook an amazing new development where one gets into a bionic legs harness and can walk about indoors. Prosthesis can now look real especially with the ever developing robotic industry. Alex and Lucy I do hope that you too will be able to benefit from the latest technology avaiable in this field. Good luck and keep us posted as you progress in your life’s ventures.
    Best wishes to you all lots of love and hugs Alexandra and Francis Pettitt.

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